Having a child means your world revolves around them. You put your own needs on hold for them. Document everything and share pictures and videos with loved ones. Play with them, feed them, bathe them. Sometimes, everything is going well, and you do your routine as usual. But, what happens if you’ve noticed something unusual?…
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Receiving any kind of medical diagnosis for a child can be devastating. At the end of the day, no matter your life’s circumstances, you want the best for them. So, after the initial shock, you start looking for information. What does it all mean? How will it impact your child’s life? What can you do…
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Iris Ten is a nurse and home health caregiver of 8-year-old J.G. They met in May 2019, when J.G.’s mom looked for someone to help her take care of her son, who has muscular dystrophy, is non-verbal, and has a tracheostomy. J.G. is homeschooled and his mom stays at home with him all day to…
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Receiving a medical diagnosis for a serious health condition can feel frightening and overwhelming. The feelings are multiplied when the person with the disease is your child. What does it all mean? How did it happen? What does treatment entail? All these questions rush through your mind as you try to accept this new reality…
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Finding out your child needs an organ transplant can make you feel overwhelmed, anxious, and helpless. But, between the moment a donor has been found through surgery, things may seem to happen too fast to stop and really think about them. It’s once you’re ready to go home that this new reality sinks in. What…
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Having a child who needs to undergo surgery is an overwhelming — and often heartbreaking — experience. You want to do everything under the sun to protect your little one. Make them comfortable, ensure their health, and provide the best care possible. So, once they come out of that operating room, you want to know…
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One of the most unfair things about life is receiving a dire medical diagnosis for a child. It’s heartbreaking at any age, but it feels almost sinister when it relates to someone who’s just starting their life. And if the diagnosis is for a lesser-known condition, you’re left with a million questions. What does Duchenne’s…
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Your child is your everything. The reason you work longer hours — or the reason you stay at home more often. The reason you look for ways to improve your home life, plan fun games, and make time for bedtime stories. So if they’re diagnosed with an illness, you can feel like your world is…
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Receiving a dire medical diagnosis always comes with an overwhelming sense of helplessness. Why is this happening? What does it all mean? Things become even more excruciating when it’s a loved one who’s receiving the diagnosis — especially if it’s either a fatal condition or a lesser-known one, such as sickle cell anemia. What, exactly,…
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Enid Braxton has been a nurse since 2001 — a career choice she made when she was still a child growing up in England. She’s worked in nursing homes, hospice, and pediatric care. In 2017, she was assigned to help care for a non-verbal young child with cognitive disabilities. Her client may not be able…
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