Caring for a Child with Sickle Cell Anemia Your child is your everything. The reason you work longer hours — or the reason you stay at home more often. The reason you look for ways to improve your home life, plan fun games, and make time for bedtime stories. So if they’re diagnosed with an illness, you can feel like your world is… Read More
Sickle Cell Anemia Receiving a dire medical diagnosis always comes with an overwhelming sense of helplessness. Why is this happening? What does it all mean? Things become even more excruciating when it’s a loved one who’s receiving the diagnosis — especially if it’s either a fatal condition or a lesser-known one, such as sickle cell anemia. What, exactly,… Read More
When a Patient Becomes Like Family Enid Braxton has been a nurse since 2001 — a career choice she made when she was still a child growing up in England. She’s worked in nursing homes, hospice, and pediatric care. In 2017, she was assigned to help care for a non-verbal young child with cognitive disabilities. Her client may not be able… Read More
Caring for a Child with Fragile X Syndrome Being the parent and/or caregiver of a child with a serious medical condition comes with a long list of worries — how did it happen? What’s the best kind of treatment? How can you ensure your child has the best possible care and a relatively normal life? Fragile X syndrome (FXS) is one of those… Read More
Fragile X Syndrome Being a parent is hard work. But, finding out your child has a medical condition increases the struggle tenfold. First, there’s shock. Then, your mind starts reeling with so many questions. What does it mean? How did it happen? What does treatment involve? How will this affect my child? Such is the case with rare… Read More
Cystic Fibrosis (CF) Most people take breathing for granted. It’s something that’s done automatically, and it’s practically not thought about — until someone has difficulties bringing air into their lungs. Such is the case with cystic fibrosis. Getting a diagnosis can be terrifying, but with proper management and lifestyle changes, you can have as normal a life as… Read More
Lennox-Gastaut Syndrome (LGS) As a parent, you do whatever needs to get done to ensure your child’s welfare — a loving home, food, and a safe environment. But no matter how hard you try, some things may be out of your control — such as when you receive a medical diagnosis. The experience can feel even more overwhelming… Read More
Pediatric Home Care Tips for Ventilator Dependent Children Finding out your child needs a ventilator to breathe properly is crushing. Here’s your little baby — regardless of age, they’re always your baby — requiring assistance to do one of the most vital functions. So when it’s time to take your little one home, you may be wondering how to make sure everything goes smoothly. Do… Read More
CPAP Therapy One of the most important things a person can do on a regular basis to be well-rested and alert is to get a good night’s sleep. Yet, in many instances, it can be easier said than done. Small children, insomnia, stress at work, and financial worries can all play a role in keeping you up… Read More
Abdominal Compartment Syndrome (ACS) in Children Children are often known for their care-free attitudes and carelessness – resulting in bumps, bruises, scrapes, and other injuries. While minor boo-boos can be turned into little life lessons, major accidents that result in swelling and bleeding — specifically in the abdomen — can lead to more life-threatening conditions like abdominal compartment syndrome (ACS). What… Read More
